Tag Archive | medication

Great book to read

I highly recommend From Fatigued To Fantastic by Jacob Teitelbaum M.D. It was the first book I picked up after being diagnosed in 2007.  I can’t say enough about it.  I read it from cover to cover.  It explained the disease and gives great recommendations for supplements and medications.  Dr. Teitelbaum has been on shows like Dr Oz talking about Fibromyalgia.  He has his own website for supplements, too.  I recommend following him if you want to study the disease.

2 Bad Days in a Row & Warm Water Therapy

Well, yesterday was a REALLY bad day.  The pain has been building up.  The pain is in my thighs and arms.  It would not go away with any of the medications I have.  I have tried the Flexeril, Ibuprofen, Tramadol, and Vicodin.  Nothing is touching the pain.  It escalated to the point that I couldn’t even walk.

As a precaution I have all of my meds and a glass of water on my nightstand.  I have basket of all of my meds.  It’s kind of crazy, but I have to prepare for the worst.  And the worst happened yesterday.  The meds worked well enough to get me out of bed and up the stairs to eat breakfast and then up again at dinner time.  But I just had my breakfast and dinner held until I could get out of bed.

I am very fortunate to be living with my parents, who help me out a lot.  I try not to ask much of them.  But they are kind enough to take my dog out and feed him in the morning.  He’s an early riser and grandma takes him potty when she gets up for work.  Then he likes to go in with Papa and have his cuddle time in the morning.  It really helps me out.  I can’t get out of bed before ten on most days.  It’s not because I’m lazy, it’s because I am so very exhausted.

My mom and I are taking a class through a local medical facility.  It’s a warm water arthritis class.  It had to be okayed by our doctors.  I’m hoping it helps both of us out.  She had fibromyalgia too.  I am looking forward to it.  It starts tomorrow.  Then I got a script from my doctor to go for warm water physical therapy.  I found a place in town to go too.

All in all, these past 2 days have been really rough.  I am still in pain, but I was able to get out of bed and shower today.  That’s a huge thing, sometimes!  It takes a lot out of me to shower on bad days.

Bad Fibro Day & Baclofen

I had a very rough day today.  The pain started at 3 AM.  I tried not taking anything because I needed to be some where today.  But when I rolled over at 6:30 AM, I couldn’t take the pain and needed to take my meds.  It was a pain like I haven’t had in quite some time!  It was widespread pain.  My arms, legs, back, and neck were killing me.  It was awful!

My doctor gave me a new medicine called Baclofen.  It’s another muscle relaxant.  It is stronger than Flexeril.  My insurance company said they were not going to insure the Flexeril any longer.  I was very nervous because it was helping with my pain.  But my doctor gave me some samples of Baclofen to try.  It works. It does appear to be stronger.  So I can now begin using it for my pain, along with my other basket full of meds by my bed.

Something to do today & Friends

Well, I had an errand to run today and had to do it no matter how I felt.  My aunt was counting on me and I already rescheduled.  We were supposed to do it on Tuesday.  So I felt obligated to do it.  I hate having to cancel on people when I am not feeling well.  It’s so inconvenient for the other person.  They get up and get ready and then I call and cancel their plans.  I hate it.  I feel like such a loser.  But the pain and exhaustion gets the best of me and I can’t function.

A few weeks ago I had plans with a friend that I just reconnected with after not talking for years.  I felt completely awful and couldn’t function.  I woke up at 4 am in horrible pain.  So I took my meds and knew I had to be up at 8 am.  So I set my alarm and when I woke up, I still felt awful.  My entire body was in pain and the medication, Flexeril, wasn’t working at all.  But it makes me extremely loopy.  So I sent her a text message at 8 am to let her know that I wasn’t going to be able to make it.  I didn’t want to call because I didn’t want to wake her up.  WELLLLL, that wasn’t the case at all.  I woke up at noon too missed phone calls and tones of texts.  In my loopy state, I sent my aunt the text that I couldn’t make it for coffee (to which she replied to me that she had no clue what I was talking about).  And texts, phone calls, and voice mail from my friend wondering where the heck I was.  I would have been so upset with me if I were her.  And that’s the life of a Fibromyalgia Sufferer!  My life is one big mixed up mess.

I feel awful that my life consists of constantly cancelling on people.  And I don’t know if they really understand what I am going through or not.  But I have to look at it from their perspective thinking how annoying I must be to have in the family or be friends with.