I highly recommend From Fatigued To Fantastic by Jacob Teitelbaum M.D. It was the first book I picked up after being diagnosed in 2007. I can’t say enough about it. I read it from cover to cover. It explained the disease and gives great recommendations for supplements and medications. Dr. Teitelbaum has been on shows like Dr Oz talking about Fibromyalgia. He has his own website for supplements, too. I recommend following him if you want to study the disease.
Well, yesterday was a REALLY bad day. The pain has been building up. The pain is in my thighs and arms. It would not go away with any of the medications I have. I have tried the Flexeril, Ibuprofen, Tramadol, and Vicodin. Nothing is touching the pain. It escalated to the point that I couldn’t even walk.
As a precaution I have all of my meds and a glass of water on my nightstand. I have basket of all of my meds. It’s kind of crazy, but I have to prepare for the worst. And the worst happened yesterday. The meds worked well enough to get me out of bed and up the stairs to eat breakfast and then up again at dinner time. But I just had my breakfast and dinner held until I could get out of bed.
I am very fortunate to be living with my parents, who help me out a lot. I try not to ask much of them. But they are kind enough to take my dog out and feed him in the morning. He’s an early riser and grandma takes him potty when she gets up for work. Then he likes to go in with Papa and have his cuddle time in the morning. It really helps me out. I can’t get out of bed before ten on most days. It’s not because I’m lazy, it’s because I am so very exhausted.
My mom and I are taking a class through a local medical facility. It’s a warm water arthritis class. It had to be okayed by our doctors. I’m hoping it helps both of us out. She had fibromyalgia too. I am looking forward to it. It starts tomorrow. Then I got a script from my doctor to go for warm water physical therapy. I found a place in town to go too.
All in all, these past 2 days have been really rough. I am still in pain, but I was able to get out of bed and shower today. That’s a huge thing, sometimes! It takes a lot out of me to shower on bad days.
I had a very rough day today. The pain started at 3 AM. I tried not taking anything because I needed to be some where today. But when I rolled over at 6:30 AM, I couldn’t take the pain and needed to take my meds. It was a pain like I haven’t had in quite some time! It was widespread pain. My arms, legs, back, and neck were killing me. It was awful!
My doctor gave me a new medicine called Baclofen. It’s another muscle relaxant. It is stronger than Flexeril. My insurance company said they were not going to insure the Flexeril any longer. I was very nervous because it was helping with my pain. But my doctor gave me some samples of Baclofen to try. It works. It does appear to be stronger. So I can now begin using it for my pain, along with my other basket full of meds by my bed.