Tag Archive | life

The BIG Fibromyalgia Diagnosis

So, you went to the doctor and she/he said you have fibromyalgia.  I’m sure your heart sunk.  You probably, like me, thought what now.  My life is over.  I’ll never be the same again.  There goes my quality of life.  You probably did your research online before being diagnosed.  Everyone does.  We usually go in to our doctor’s office with the information and present the disease to them.  I hope that you were given a battery of tests, before slapping a diagnosis on you.  This is a disease of exclusion (the ONE thing I WANT EVERYONE to know and learn).  The doctor should run a battery of tests to exclude anything and everything.  They should be looking for several things like (but not limited too) Lyme’s disease, thyroid issues, arthritis, candida, hormonal issues, etc.  There’s so much that should be ruled out.

So now that diagnosis is made.  For some, it’s relief and some it’s depressing.  Let me assure you that your life is not over because of this diagnosis.  This is just a new way of life.  You are not going to die from this disease.  It is just a shift in the way your going to be living the rest of your life.  It will change how you plan your life from here on out.  Your daily, weekly and monthly activities will change.  You will learn to manage your time and energy.  Some days you will have a ton of energy and pain.  Other days, it will be less.  Please do not use all your energy in one day.  You will pay for it the next.  Spread out activities, like household chores.  Instead of doing all of your housework in one day spread the chores throughout the week.  When planning a family activity, don’t do anything the day before.  Save your energy for friends and family.  It’s a matter of learning to manage energy levels.  Managing energy can help manage the amount of pain you will be in and vice versa.



My Life’s Story, MEN, Part 2

So I came out of a drug induced coma, with no explanation as to why I was healing.  But I WAS!  I knew why.  It was by the grace of God and my angel.  I met up with her and her family.  We went to dinner several times.  She bought me the book, The Purpose Driven Life.

Well, I got out of the hospital and was doing well.  It was about 2 months after my surgery that I was able to drive.  I finally got my freedom back.  It was the best thing, or so I thought!

It was a night in October that I had made plans with I man I called a friend (who shall remain nameless) at the time.  I didn’t want to go out alone with him because I was dating someone else (or so I thought).  I convinced him to ask this man out.  Not a lot of people knew that the other guy and I were dating.  We believed in living our lives in privacy.  It’s not necessary that everyone knows the date and time you take a crap.  So there were about 5 of us that went out.  We were having a good time.  I had one beer and a shot at the bar.  I knew my tolerance was down because I was sick and in the hospital and I drove to the bar.  I needed to be careful.  I left my beer and went to the bathroom (ladies NEVER UNDER ANY CIRCUMSTANCE DO THIS.  No matter how well you know someone).  I came back and finished my beer.  The last thing I remember is waking up in my bed in a complete fog and I couldn’t wake up.  I was fully dressed with my shoes by my bed.  My car was in the driveway and I have no idea how it got there.  I kept waking up and falling asleep.  I couldn’t snap out of it.  I was in a lot of pain.  I had bruising on my arms (thumb prints and hand prints) and up and down my thighs.  I couldn’t make sense of what had happened.  I called the guy I was seeing and he wouldn’t return my calls until I told him that I needed to find out what happened.  He told me what he heard and that he left the house (this guy’s house) that we were at.  He did nothing to try to protect me.  I would have never done this to a man I was dating.  Long story, short, my sexual assault counselor said I had symptoms of being drugged by this person and that it had to be pretty violent given the fact that the bruises were so bad.  You know the saying money talks and bullshit walks!  Well, I lived it.  The asshole cried to his parents, who hired a big shot lawyer and I had no money for a lawyer and had to represent myself.  The judge threw everything out and said there wasn’t enough evidence.  She wouldn’t even give me an order of protection.  So the poor person gets to live the rest of her life as a rape victim and the rapist gets to go free and live his life as if nothing happened.

It took me a long time to trust someone again.  A man who began pursuing me would never know how difficult I would be to catch!  LOL.  It took about 3 months of him talking to me for me to trust him.  I told him that I was scared because of what happened to me.  He told me he would protect me.  He was the sweetest man.  I felt safe in his arms.  It was on his 40th birthday that we had our first kiss.  I will never forget it.  I was so happy to be with him.  Until, that fateful day when my parents said they were moving to Florida and I had to go with them because I had nowhere to go.  So I signed up for every apartment in town.  I was on a bunch of waiting lists and told him that I would be visiting every 3 months until I got a place to live.  Then one awful day, he went to the ER because he was having pain in his stomach.  Come to find out he had esophagus cancer.  I came in to town to see him but he wouldn’t see me.  I don’t think he wanted me to see how bad he was.  But he had great family and friends to help him and take care of him.  I am so grateful to them for doing that.  He suffered for 5 months.  I felt so helpless.  But I know that he is in a better place and I will never forget his smile and eyes.  And he made me a better person and helped me heal in ways I would have never known.  I went back to Florida after the funeral.

4 months later, my best friend was killed in a tragic car accident.  It was horrible.  So back to Illinois I went for another funeral.  I was asked to speak at her funeral and it was an honor.

My life has not been fair to me and I don’t know if I will ever really pick up the pieces………….


The Fibromyalgia Diet: Eating for a Better Quality of Life

There has been little information available from the scientific community on nutrition and diet for Fibromyalgia patients. Research has not yet proven that any specific foods affect Fibromyalgia, positively or negatively. But we do know that eating a good balanced diet helps everyone’s body function at its best. Good nutrition can help in your health and healing. Eating healthful foods including those low in fat and high in immunity boosting antioxidants and phytochemicals may work together to help maximize energy and alertness and minimize constant fatigue and lethargy.

Many people have overcome their Fibromyalgia symptoms by changing their lifestyle and diet. Mary Moeller, author and spokeswoman on Fibromyalgia, now enjoys a state of remission from her Fibromyalgia symptoms by making a few changes in her lifestyle. To reach this ideal she advocates eliminating 4 foods completely from your diet (Mary Moeller’s Fibromyalgia Cookbook.)

    1. Chocolate
    1. Carbonated beverages
    1. Coffee
    1. Alcohol

Along with changes in nutrition she encourages stretching, exercising and drinking 8+ glasses of water a day. Also, in Mary Moeller and Joe Elrod’s book, The Fibromyalgia Nutrition Guide, they advocate a more complete list in order to overcome fatigue and feel your best. The 12 items to avoid are:

    1. High fat dairy foods
    1. White sugar and white flour
    1. Fried foods
    1. Preservatives, junk food, and salt
    1. Red meat (especially salt cured, cured bacon, smoked, or nitrate cured)
    1. Coffee and caffeinated teas
    1. Colas, soda pop, and carbonated beverages
    1. Liquid with your meals
    1. Alcoholic beverages
    1. All forms of tobacco
    1. Prolonged periods of direct sun exposure
    1. Nutrasweet and saccharine

Along with Mary Moeller and others, I also have enjoyed the benefits of better health after quitting carbonated beverages and coffee. Before, I would have my diet coke and coffee in order to get me out of bed in the morning. As a result I was very hyper and then about 2 hours later or so I would crash and be very tired and fatigued. So I would pump more caffeine and diet coke down to get me moving again. As a result I would spike, crash, spike, crash.

My energy level was on a continual roller coaster ride of highs and lows. Since quitting I have been enjoying a nice steady stream of constant energy all day long. When I first heard of eliminating sodas I was mortified. I thought I was doing extremely well to only allow myself 1-2 cokes a day, and to give them up, why I thought, “never”! But little by little I finally weaned myself off, and boy am I glad I did. I have so much more energy.

Some unsubstantiated studies claim that carbonated beverages leak phosphorus from your bones, and the aspartame (Nutrasweet) in sodas cause memory loss. Others have claimed the sugar in carbonated beverages (some as many as 12-14 teaspoons) may contribute to yeast problems.

Caffeine in soda and other beverages is a diuretic, which means you need to drink additional water to replace the lost water. Scientists at Washington State University found that caffeine makes people lose calcium in their urine faster than they usually do. Caffeine can also put added stress on the adrenal glands and the liver. Since most Fibromyalgia sufferers may have adrenal malfunction due to chronic stress and inadequate nutrition it is probably wise to avoid the caffeine and carbonated drinks.

I know that at times I eat more food or sugar as a way of dealing with stress or handling challenging problems that arise. When I do this it puts added stress on my adrenal glands. Adrenalin released from the adrenal gland penalizes the body and can cause acute symptoms. By burning too much sugar your body may deplete its vitamins and minerals especially the B vitamins. Adrenalin has even been known to be responsible for some panic attacks.

If you subject your body to highly refined, over-processed foods, sugar, caffeine, pork, junk food, highly processed starches, additives and preservatives, and highly acid foods, it is possible that your body will suffer because of an already compromised immune system that may be found in many Fibromyalgia sufferers.

Most processed foods are often adulterated by heating, and are full of additives, preservatives, colorings, salt and sugar. Fried foods and salt have been found to aggravate pain or swelling in some Fibromyalgia patients. By the way, most drinks purchased at a store have been processed including soda, bottled juices, coffee, alcohol and others. Since many Fibromyalgia patients are sensitive to food, drugs, chemicals and pollutants in the environment anyway it is important we do not subject our bodies to more than what’s necessary.

Even many non-processed foods or “natural” foods can be hazardous to the health of Fibromyalgia patients. Many Fibromyalgia patients are chocoholics. Chocolate is high in fat and caffeine. According to Mark Pellegrino in his book, Fibro Survivor, reducing fatty intake could increase energy. Don’t be fooled when buying dietary chocolate, which has no added sugar. Although they may have replaced the sugar with manitol or nutrasweet the fat caloric content still remains high. Therefore a low fat diet is recommended. This means chocolate should not be ingested or should be eaten in moderation.

Certain foods have been found to cause fatigue. Doctors concluded in Annals of Rheumatic Disease that in certain individuals some foods aggravate arthritis. Often, foods that are acidic are the culprit. Therefore an arthritic diet is one that remains alkaline. Some Fibromyalgia patients find that highly acidic foods such as citric, foods in the nightshade family like tomato, potato, eggplant, and peppers, red meat, cow milk products, brown and white wheat flour products, sugar containing foods, coffee, chocolate all seem to trigger more muscle pain.

Different foods affect each individual Fibromyalgia patient differently. For instance some Fibromyalgia patients have severe food allergies for dairy, wheat, corn, nightshade family plants, etc. whereas others do not. You can discover your own food sensitivity by eliminating foods that trigger pain. Keeping a food diary can help. In your diary write down everything that goes into your mouth and at the same time track your Fibromyalgia pain. By comparing the two you may discover that certain foods may trigger allergies or pain. It has been found that food allergies may undermine your nutrient uptake.

In a 1992 study as reported in the book, What Your Doctor May Not Tell You About Fibromyalgia, by Paul St. Amand M.D. and Claudia Marek, it states that:

60% of Fibromyalgia patients of normal weight crave carbohydrates, and 75% of obese Fibromyalgia patients crave carbohydrates.

However, cravings for carbohydrates are not limited to Fibromyalgia sufferers and therefore, can’t be considered a unique characteristic of individuals suffering from Fibromyalgia.

Some Fibromyalgia patients have a low carbohydrate intolerance or reactive hypoglycemia (low blood sugar) that occurs after eating carbohydrates. This can cause problems metabolizing carbohydrates, inability to lose weight, fatigue, carbohydrate craving and worsening symptoms. Carbohydrates stimulate insulin production. Excess insulin can cause an increased uptake of sugar into muscle and liver, which can be stored as fatty acids in fat cells, and prevent carbs from being used.

There are nutritional strategies to help Fibromyalgia patients. Dr. Mark Pellegrino says that because of the biochemical changes in Fibromyalgia patients it makes good medical sense to try a low carb, high protein diet. Protein diets can decrease cravings, increase energy, lose weight and help with hypoglycemia. Pellegrino suggests watching carb’s like bread, potatoes and refined sugars. There are many fad protein diets like Sugar busters, Zone, Adkins and other low carb diets. However, Pellegrino says that some Fibromyalgia patients do not tolerate a protein diet as well as others, so experiment and find what dietary plan works for you.

Dr. August believes that a 30/30/40 ratio of carbohydrate, fat and protein enables Fibromyalgia patients to reach their optimum weight with maximum health. Hypoglycemia and low carb intolerance can be controlled by diet. Dr. August advocates the Zone diet (Sears and Lawren 1995).

However, there is strong evidence that the Zone diet “works” mainly because of the reduction in total caloric intake with little or nothing to do with the release of insulin. The reader is referred to some excellent websites that present pro and con arguments over the Zone and other low carb/high protein/high fat diets:

    • watchingweight.com/lowcarb.htm
    • cyberiron.com/nutrition/notzone.html
    • getzoned.com.au/In_the_Media_text_only.htm
    • nutrition.ucdavis.edu/perspectives/SeptOct99.htm

Your cells must receive nourishment and eliminate wastes. When you start to eat healthful foods you may find that you crave sugar, fat, starch and processed foods. This is a normal occurrence due to a physiological change in your body’s chemistry. During the transition time try not to indulge in sugar, fat and processed foods. These cravings will become fewer and further between as time goes on. Of course, people who do not suffer from Fibromyalgia also have the same cravings; therefore, we are not unique.

People with Fibromyalgia need to take extra care to eat well. Try to incorporate raw foods into your diet. I try to eat a piece of raw fruit or vegetable for breakfast and a raw vegetable or salad for lunch. Raw foods contain enzymes that can assist in the digestion of foods. Raw foods are full of antioxidants and phytochemicals that help boost the immune system.

If have a juicer, fresh carrot juice is a wonderful addition to incorporate into your lifestyle. Many people have claimed to heal cancer along with an array of diseases by eating raw foods and drinking carrot juice. Of course, most of these claims are testimonials with little scientific research to back the use of raw foods to prevent chronic disease.

Along with vegetables, and fruits, omega 3 fish oil contains anti-inflammatory properties. Eating well does not mean you have to starve yourself or totally eliminate all the foods you love. Rather make small gradual changes and focus on the foods you enjoy.

Eating well may help reduce the fatigue and maximize energy. Incorporate variety, balance and moderation. Improve your health by reevaluating your overall eating habits and try making your diet more nutritious. Your body has been wonderfully and marvelously designed. Do you allow it to run as efficiently as possible?

The photochemicals present in vegetables and fruits have been shown to have a protective effect against many chronic diseases including heart disease and cancer the second most prevalent killers in the U.S. These same phytochemicals may help reduce the pain response among Fibromyalgia patients. Although definitive solutions to the Fibromyalgia dilemma await research verification it is my thought that we begin to incorporate more “raw foods or slightly cooked” vegetables and fruits into our diet in order to live a quality life.

Look for healthy recipes on our website (www.fibrofog.com) that use the principles of good eating discussed in this article. The bonus (as testified to by my husband) is that you will be considered a “gourmet cook” as your health improves.

This information was developed and written by Colleen Black-Brown.

(c) Colleen Black-Brown. All rights reserved. Website: http://www.fibrofog.com

Found on http://www.prohealth.com/library/showarticle.cfm?libid=8287 on 1/19/15