Tag Archive | doctor

The BIG Fibromyalgia Diagnosis

So, you went to the doctor and she/he said you have fibromyalgia.  I’m sure your heart sunk.  You probably, like me, thought what now.  My life is over.  I’ll never be the same again.  There goes my quality of life.  You probably did your research online before being diagnosed.  Everyone does.  We usually go in to our doctor’s office with the information and present the disease to them.  I hope that you were given a battery of tests, before slapping a diagnosis on you.  This is a disease of exclusion (the ONE thing I WANT EVERYONE to know and learn).  The doctor should run a battery of tests to exclude anything and everything.  They should be looking for several things like (but not limited too) Lyme’s disease, thyroid issues, arthritis, candida, hormonal issues, etc.  There’s so much that should be ruled out.

So now that diagnosis is made.  For some, it’s relief and some it’s depressing.  Let me assure you that your life is not over because of this diagnosis.  This is just a new way of life.  You are not going to die from this disease.  It is just a shift in the way your going to be living the rest of your life.  It will change how you plan your life from here on out.  Your daily, weekly and monthly activities will change.  You will learn to manage your time and energy.  Some days you will have a ton of energy and pain.  Other days, it will be less.  Please do not use all your energy in one day.  You will pay for it the next.  Spread out activities, like household chores.  Instead of doing all of your housework in one day spread the chores throughout the week.  When planning a family activity, don’t do anything the day before.  Save your energy for friends and family.  It’s a matter of learning to manage energy levels.  Managing energy can help manage the amount of pain you will be in and vice versa.

 

 

Bad Fibro Day & Baclofen

I had a very rough day today.  The pain started at 3 AM.  I tried not taking anything because I needed to be some where today.  But when I rolled over at 6:30 AM, I couldn’t take the pain and needed to take my meds.  It was a pain like I haven’t had in quite some time!  It was widespread pain.  My arms, legs, back, and neck were killing me.  It was awful!

My doctor gave me a new medicine called Baclofen.  It’s another muscle relaxant.  It is stronger than Flexeril.  My insurance company said they were not going to insure the Flexeril any longer.  I was very nervous because it was helping with my pain.  But my doctor gave me some samples of Baclofen to try.  It works. It does appear to be stronger.  So I can now begin using it for my pain, along with my other basket full of meds by my bed.

New Medicines

English: An assortment of different medicines ...

English: An assortment of different medicines and remedies used to treat soldiers during the American Civil War era on display at the battle of Corydon in 2009 (Photo credit: Wikipedia)

I got a new prescription strength topical cream from my doctor in the mail today.  I tried it and it appears to work.  I’m not sure if it’s all in my head.  The best part is it’s $1.00 to purchase it.  I expected it to be so much more.  I look forward to trying new treatments with my new pain management doctor.  He’s very knowledgeable.  I wish I had gone to someone like him a long time ago.  I highly recommend going to a place like this if you are dealing with any kind of pain.  I got to an office called The National Pain Institute.  It’s a great place.  He, also, gave me a new prescription for my pain and refilled my other pain medications.  And he wants to start me on a vitamin IV treatment.  I’m so happy I went to him.

Fibromyalgia and Biofeedback, wrote 6/14/10

Let’s talk biofeedback and fibromyalgia. I am a migraine sufferer, also, along with Fibromyalgia. I have suffered with migraines since I was 7 years old and I am now 35. It has been a long haul learning about natural ways to deal with them. One thing I learned from Dr. Robins, at the Robins Headache Clinic, is biofeedback.

Biofeedback is a process that enables an individual to learn how to change physiological activity for the purposes of improving health and performance. Precise instruments measure physiological activity such as brainwaves, heart function, breathing, muscle activity, and skin temperature. These instruments rapidly and accurately “feed back” information to the user. The presentation of this information — often in conjunction with changes in thinking, emotions, and behavior — supports desired physiological changes. Over time, these changes can endure without continued use of an instrument (obtained from The Association for Applied Psychophysiology and Biofeedback, Inc, on 6/14/2010 at http://www.aapb.org).

Dr. Robins and his staff taught me about biofeedback and gave me tapes to listen too. I was attached to a body temperature device that measured my temp before and after the biofeedback session. It was amazing that I was able to lower my temperature with the biofeedback exercise.

I would highly recommend learning biofeedback techniques for your particular ailment. Fibromyalgia sufferers can use imagery to learn to ease the pain and relax your body. Keep this in mind next time you visit your doctor or counselor. They might be able to direct you to the proper avenues to learn about this technique.